What is the research behind the Dandelion Toolkit® and visual patient communication?
Phase I Report
In research funded by MBCAlliance.org, the Phase I Report details discoveries made in patient communication and responses to the Dandelion Toolkit.
Phase II Report
In research funded by MBCAlliance.org, this report describes research conducted with 25 clinics in the USA, Mexico, Turkey, and Australia, and further developments to the Dandelion Toolkit.
Research Highlights on Patient Needs
Improve quality of discussions
Patients have difficulty remembering what they hear. Visuals can greatly improve the effectiveness of doctor-patient discussions.
Patients likely
overestimate their
knowledge.
Not realizing they know less than they should, they also likely overestimate their ability to participate in decision making. Research showed that while 96% of patients reported knowing their cancer (sub)type, only 46% could fully state what it was (n=484).
Related research and presentations:
United Nations Civil Society Conference
Salt Lake City, Utah, 2019
Speaker on Human Centered Design for nonprofits. Shared the Design Thinking framework used in the Dandelion Toolkit
World Cancer Congress Panel Speaker and Presenter
Kuala Lumpur, Malaysia, October 2018.
Poster Abstract and Presentation: Identifying gaps in metastatic breast cancer patient knowledge and their communication experiences with health care professionals and developing visually based solutions to overcome those gaps.
Advanced Breast Cancer 4 Conference.
Poster presentation.
Lisbon, Portugal. November, 2017.
Clinical study to improve patient and healthcare professional communication and engagement for newly diagnosed Metastatic Breast Cancer patients
Association of Oncology Nurse Navigators. Poster presentations.
Las Vegas, USA. November, 2016.
Using the power of design to more effectively communicate with Metastatic Breast Cancer patients, the “Dandelion Toolkit”
Identifying gaps in metastatic breast cancer patient knowledge and their communication experiences with health care professionals
Overcoming Communication Barriers with Metastatic Breast Cancer Patients, an interview with Corrine Ellsworth-Beaumont
Oncology Nursing Society Conference. Poster presentation.
San Antonio, Texas, USA. April, 2016.
“Identifying gaps in metastatic breast cancer patient knowledge and their communication experiences with healthcare professionals.”
Corrine and a patient who helped in developing the toolkit.
San Antonio Breast Cancer Symposium
San Antonio, Texas, USA, 2015
Communication Design Research: Improving Communication between Metastatic Breast Cancer Patients and their Health Care Professionals, Phase I
Work was also presented at the Metastatic Breast Cancer Alliance Town Hall meeting at the conference, as well as the MBCA Member Breakfast at SABCS.
St. Gallen International Breast Cancer Conference. Poster presentation.
Vienna, Austria. 2015.
A visual approach to improve early detection and patient reporting.